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Butterfly Boy: The Faith that Keeps Him Going

This very emotional story of our courageous brother Basit Bahram is brought to us by Mohamed Hoblos. Find out how his faith keeps him going! 

Imagine living with an incurable genetic disease leading to disability and often a reduced life expectancy.

Since his birth brother Basit is suffering from a rare skin condition known as Epidermolysis bullosa (EB).

EB is caused by a faulty gene that makes skin extremely fragile. Hence causes uncontrollable outbursts of wounds and blisters on the body.

“It’s hard […] I’m immobile for the most part. So my day entails me being on my bed for the most part. I can’t really walk. You just look at the way people walk and run and you can’t help but think: I wish I could do that…”

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Two years ago, Basit’s older brother Milad, sadly passed away from the same disease.

How this 25 years old brother is still hanging on to life while his condition while is so painful and incapacitating?

His first answer is: Faith and Allah’s promise.

“if I’m brutally honest […] what is my life without faith?! I would have considered suicide a long time ago…”

“[..] when I hear about the mercy of Allah. When I hear about his promise…The thought of being

able to be with Him, persevering and struggling to be with Him. […]

Have some Sabr (patience) and inshallah on the Day of Judgement inshallah we’ll see

the fruits of our labor. This gives me purpose.”

Faith is his shield masha’Allah.

Basit expresses as well his deep love and gratitude towards his parents who took care of him and never complained.

“Religion has been the bedrock of my life, but my parents are the other factor. Alhamdulilah for them, […] they make it so normal. […] It is something that I am so grateful for.”

The strength of Basit’s faith is incredibly touching and uplifting. Let us remember him and his loved ones in our duaa.

May we all realize how blessed we are, ameen.

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